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MY SPS JOURNEY - From Sciatica to FND to Stiff Person Syndrome Plus (PERM)
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SPS & PERM
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MY SPS JOURNEY - From Sciatica to FND to Stiff Person Syndrome Plus (PERM)
Home
Start Here
SPS & PERM
FND
Contact
Home
Start Here
SPS & PERM
FND
Contact
08 | THE DIAGNOSIS : CONFIRMED WHILE IN A COMA
Tony Holt 20/05/2026 Tony Holt 20/05/2026

08 | THE DIAGNOSIS : CONFIRMED WHILE IN A COMA

The Diagnosis

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07 | Waiting for Answers and the Crisis
Tony Holt 13/02/2026 Tony Holt 13/02/2026

07 | Waiting for Answers and the Crisis

Sudden Decline And Crisis

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06 | The Neurology Appointment and the First Clear Clue
Tony Holt 13/02/2026 Tony Holt 13/02/2026

06 | The Neurology Appointment and the First Clear Clue

The Neurology Appointment

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05 | The Spasms Take Over
Tony Holt 13/02/2026 Tony Holt 13/02/2026

05 | The Spasms Take Over

The Spasms Take Over

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04 | the condition Worsens rapidly
Tony Holt 13/02/2026 Tony Holt 13/02/2026

04 | the condition Worsens rapidly

The Condition Worsens

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03 | When THE SYPTOMS DIDN’T FIT WITH SCIATICA
Tony Holt 13/02/2026 Tony Holt 13/02/2026

03 | When THE SYPTOMS DIDN’T FIT WITH SCIATICA

When The Symptoms Didn’t Fit

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02 | The FIRST MISDIAGNOSIS : DISCHARGED WITH SCIATICA
Tony Holt 13/02/2026 Tony Holt 13/02/2026

02 | The FIRST MISDIAGNOSIS : DISCHARGED WITH SCIATICA

The First Misdiagnosis

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01 | How It All Started
Tony Holt 28/05/2019 Tony Holt 28/05/2019

01 | How It All Started

It All Begins Here

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© 2026 My SPS Journey – A personal account of living with Progressive Encephalomyelitis with Rigidity and Myoclonus (PERM / stiff-person-plus syndrome).

This website shares one individual’s experiences and reflections. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your own healthcare team for personalised guidance.

The blog is written anonymously to protect privacy and is not intended to comment on any ongoing legal matters.